Have you Told Your Teen Girl about PCOS? Tackling the Taboo

It is reported that PCOS affects 1 in 5 women here in the UK, but do we know enough about it? If we don’t discuss it, between ourselves and with our daughters, that figure is never going to come down. It is vital we help our daughters understand their own body, and identify the things that are normal for them. So, join us as we discuss all things related to PCOS and tackle the truth behind the taboo, with help from some genuine PCOS experiences.

talk about PCOS
PCOS By Samo Trebizan | Shutterstock

What are the symptoms?

The signs of PCOS will usually become apparent during a woman’s late teens or early twenties — but it can affect women of all ages. The severity and range of symptoms experienced is likely to differ between people, but some of the possible signs to look out for include:

  • Acne or noticeably oily skin
  • Irregular periods, or a lack of any menstruation
  • Issues with getting pregnant — in PCOS, you are not ovulating/ ovulating irregularly
  • Hair growth which can be excessive on the chest, face, buttocks or back
  • Weight gain
  • Hair loss or thinning hair

Nope – I didn’t know about most of those either. I thought it just showed up when you were trying to get pregnant…

Your GP should be your first port of call if you are worried about experiencing any of the above. The problem that many women face with PCOS is that it is often misdiagnosed with a whole array or other conditions that can mimic the symptoms, making the diagnosis a long, difficult process sometimes.

“I’d experienced severe cramps that were getting in the way of my normal routines, as well as period irregularities, so I was really concerned at the time.
Before the PCOS diagnosis, my doctor suggested trying over the counter painkillers, but after few trips back to the surgery I was finally told that I had the condition”.

Niamh, 22, describes her experience and diagnosis:

Get familiar with what is normal for you and your body, and if you are concerned about anything then be sure to make an appointment with your GP. Irregular or heavier periods are some of the most common symptoms of PCOS and managing them from month to month can be difficult. Your period shouldn’t get in the way of your normal routine, so make sure you look for the right product for you, with the correct absorbency for your flow. 

You could try using non-applicator tampons, as they are available in the widest range of absorbencies. By finding the absorbency that suits your individual flow, you won’t have to worry about leaks.

By Andrey_Popov | Shutterstock

How does PCOS affect women?

Many of the reproductive processes are controlled by hormones in women, from your first period to breastfeeding and conception. Polycystic ovary syndrome is a condition which affects women’s hormone levels, specifically involving the production of androgen — male hormones. This imbalance can lead to irregular periods, meaning that your ovaries are not releasing eggs regularly.

One common misconception is that having polycystic ovaries means that you have cysts — this isn’t the case. The follicles are underdeveloped sacs, and typically eggs will form within them, but in cases of PCOS these sacs cannot release the egg, inhibiting menstruation as a result.

Is PCOS treatable?

While there is no cure for PCOS, the symptoms can be managed and relieved through multiple approaches. After a woman is diagnosed with the condition, various medications might be prescribed by a doctor following diagnosis. Clomifene is usually the first option prescribed to help ovulation resume, or metformin, used commonly to treat type 2 diabetes, can be given to women — although for PCOS it is used ‘off-label’ as it isn’t actually licensed for treating the condition in the UK. There’s also medication options for targeting other PCOS symptoms such as acne and unwanted hair loss/growth.

Becca, 24, spoke about the treatment options following her PCOS diagnosis: ”People are very unaware of how different the symptoms can be, and treatment needs to be quite personalised”.  As well as the options we’ve discussed, there are treatments based on naturopathy that women could opt for. For PCOS, it is important that as women, we deconstruct the ‘one size fits all’ approach to managing the symptoms, both visible and not.

Becca added that” it is possible for treatments to mask your symptoms rather than alleviate the root of the problem — and some women don’t even get a PCOS diagnosis before they’re offered medication for the signs”.

What does a PCOS diagnosis mean for fertility?

For many women, fertility after a PCOS diagnosis is a big concern, but the outcome isn’t always negative. With treatment in place, getting pregnant naturally is possible, and there are multiple medications which are commonly prescribed to treat symptoms but also to stimulate fertility.

Getting pregnant with PCOS
Getting pregnant with PCOS By tommaso79 | Shutterstock

A fertility specialist will be able to provide more guidance for women who have PCOS and struggle to conceive naturally. Positive steps to pursue for managing symptoms and boosting fertility include modifying your diet and lifestyle. Some women do require further help to get pregnant in PCOS cases though, and in vitro fertilisation might be recommended.

However, PCOS doesn’t affect fertility in the same way between women who are diagnosed with the condition, and natural pregnancies are possible!

Taking the taboo out of PCOS

Since the signs of PCOS affect everyone differently, there is a vast spectrum for experiencing the condition and you might only notice one or two mild symptoms. All of the women that we spoke to expressed an unawareness of the condition prior to their diagnosis, and this poses the issue of education — should schools be sharing more with their female students on this, in order to develop better understandings of our intimate health? Tackling a taboo of this nature is essential, in order to help women normalise their experiences and seek the right guidance and healthcare.

Jade, 23 described her frustration during her PCOS diagnosis: “From my experience, PCOS isn’t treated with enough sensitivity, and as few of the symptoms are visible, people can often pass it off as period pain, which makes you feel invalid”. She added, “I went through so many tests, from bloods to thyroid examinations, with no clear diagnosis, it felt like I was just being passed back and forth between doctors”.

So, let’s all become more PCOS aware this September and as always — know what is normal for your body and don’t be afraid to voice any concerns!

 

Sources:         

http://www.pcos-uk.org.uk/

https://www.nhs.uk/conditions/polycystic-ovary-syndrome-pcos/symptoms/

https://www.healthline.com/health/polycystic-ovary-disease

https://www.self.com/story/pcos-and-endometriosis-causes-symptoms-and-treatment

https://www.cosmopolitan.com/uk/body/health/a43124/7-things-every-woman-should-know-about-polycystic-ovary-syndrome/

https://www.pcosoracle.com/celebrities-with-pcos/

https://inews.co.uk/inews-lifestyle/wellbeing/polycystic-ovarian-syndrome/

https://helloclue.com/articles/cycle-a-z/deep-diagnosis-a-naturopathic-approach-to-pcos

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1334192/

https://moodymonth.com/articles/what-is-polycystic-ovary-syndrome-pcos-and-how-can-you-treat-it

https://www.glamour.com/story/living-with-pcos-taught-me-to-redefine-my-standards-of-beauty

Author: Laura

A 70's child, I’ve been married for a Very Long Time, and appear to have made four children, and collected one large and useless dog along the way. I work, I have four children, I have a dog… ergo, I do not do dusting or ironing. I began LittleStuff back in (gulp) 2004. I like huge mugs of tea. And Coffee. And Cake. And a steaming cone of crispy fresh fluffy chips, smothered in salt and vinegar. #healthyeater When I grow up I am going to be quietly graceful, organised and wear lipstick every day. In the meantime I *may* have a slight butterfly-brain issue.

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